A Disabled Boy’s Death, and a System in Disarray
Jonathan Carey did not die for lack of money.
New York State and the federal government provided $1.4 million annually per person to care for Jonathan and the other residents of the Oswald D. Heck Developmental Center, a warren of low-rise concrete and brick buildings near Albany.
We, the parents of the severely disabled, must become more vocally activist. Caring and advocating for our children in a society that has marginalized them, tends to exhaust us. But this horrific report demonstrates that we must resist the temptation to trust the system. Our children, silenced by their disabilities, are sitting ducks. I blog about raising my 16 year old blind and profoundly retarded daughter at thesoundofthesilent.blogspot.com
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