British MP proposes “Alfie’s Law” to restore parental rights in medical situations

The world watched in horror as Charlie Gard’s parents had their ability to make medical decisions forcibly taken away from them at the hands of the British government. Charlie was initially diagnosed with a rare RRM2B mitochondrial depletion syndrome, and his parents raised over $1.5 million for his care, hoping to take him to the United States to receive experimental treatment. This set off multiple court battles, as the Great Ormond Street Hospital and the British government repeatedly refused to allow them to seek care outside of the country. Charlie’s life support was ultimately removed, against his parents’ will, and he died last year.

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